Care of Adults with Chronic Childhood Conditions

Mariecel Pilapil, MD, MPH, Assistant Professor, Medicine and Pediatrics, Hofstra Northwell School of Medicine, Hempstead, NY, USADavid DeLaet, MD, MPH, Associate Professor of Medicine and Pediatrics, Departments of Medicine and Pediatrics, Icahn School of Medicine at Mount Sinai, New York, NY, USA Alice A. Kuo, MD, PhD, Professor and Chief, UCLA Medicine-Pediatrics, Director, UCLA Medicine-Pediatrics Comprehensive Care Center, Health Care Transitions Research Network (HCT-RN), UCLA Center for Healthier Children, Families, and Communities, Santa Monica, CA, USA Cynthia Peacock, MD, Associate Professor of Medicine and Pediatrics, Departments of Medicine and Pediatrics, Baylor College of Medicine, Houston, TX, USANiraj Sharma, MD, MPH, Assistant Professor, Medicine and Pediatrics, Harvard Medical School, Brigham and Women’s Hospital, Boston Children’s Hospital, Boston, MA, USA 

Part I: Facilitating the Transition from Pediatric-Oriented to Adult-Oriented Primary Care.- Facilitating the Transition from Pediatric-Oriented to Adult-Oriented Primary Care.- Part II: Care of the Emerging Adult.- Care of the Emerging Adult.- Part III: Case-Based Examples of Management of the Young Adult with a Chronic Childhood Condition.- Attention-Deficit/Hyperactivity Disorder (ADHD).- Autism.- Cerebral Palsy.- Childhood and Adolescent Cancer Survivors.- Congenital Heart Disease.- Cystic Fibrosis.- Diabetes Mellitus (Type 1).- Down Syndrome.- Human Immunodeficiency Virus (HIV).- Inflammatory Bowel Disease.- Intellectual Disability.- Juvenile Idiopathic Arthritis.- Muscular Dystrophy.- Sickle Cell Disease.- Solid Organ Transplantation.- Spina Bifida.- Part IV: Other Clinical Considerations in the Care of Adults with Chronic Childhood Conditions.- Respiratory Care of Adults with Chronic Pulmonary Disease.- Nutritional Support.- Technology Dependence of the Nervous System.- Mobility Impairment.- Sexual and Reproductive Health.- Palliative Care.- Part V: Socio-Legal Aspects of Transition Care.- Assessing and Enhancing Psychosocial Functioning.- Adherence and Self-Management.- Education.- Employment.- Independent Living.- Decision-Making and Guardianship.- Access to Health Insurance.  

"This very timely compendium discusses the long-term care and complications in adult patients who developed serious medical conditions as children. ... This book is focused on primary care and specialty practitioners who will have the opportunity to care for these patients. ... a useful guide for relatives, parents, spouses, etc., of the patients who have reached adulthood despite their early medical challenges. ... It is one of the most interesting books I have read since my residency training." (Vincent F. Carr, Doody's Book Reviews, May, 2017)