Neonatal Palliative Care for Nurses

lt;b>Alexandra Mancini (Smith) is a neonatal nurse with over 25 years experience and is the Pan London Lead Nurse for Neonatal Palliative Care, the first regional post of its kind. This is a unique post focusing on developing the training and education of staff across the London region and the development of a neonatal palliative care service. Prior to this, Alex was the Neonatal Matron at Chelsea and Westminster Hospital including providing practical and emotional support for families and staff, and has been instrumental in developing local and national guidelines, including robust complex and palliative care pathways.  Alex is lead author for the UK national document 'Practical guidance for the management of palliative care on neonatal units' published in 2014. Alex has published widely, including co-authoring book chapters and presents frequently both nationally and internationally. She has held posts as an invited expert member of the Riverside Research Ethics Committee, Clinical Ethics & Advisory Group of a Central London Hospital and sits on the ICPCN's (International Children's Palliative Care Network) Expert Advisory Group on Perinatal and Neonatal Palliative Care. Alex is a guest reviewer for British Medical Journal (BMJ) and the Journal of Neonatal Nursing (JNN).For the last ten years, Alex has developed the National Neonatal Palliative and End of Life Care conference in collaboration with Child Bereavement UK (CBUK) and she is a facilitator for CBUK's national educational workshops. In 2016, Alex led the development of an online learning module 'Perinatal Palliative Care' designed for the Royal College of Midwives, this online module is also available on the ICPCN e learning website.  Building on her educational work over previous years, Alex is passionate about raising awareness on neonatal palliative care, by educating professionals across the UK and internationally, in a variety of settings, including conferences and is currently strengthening working relationships with local children's hospices. Alex is an invited guest lecturer at several London universities, including Kings College London, Kingston and London South Bank, teaching Neonatal Palliative and End of Life Care on pre and postgraduate courses. Alex gained a MSc in Complex and Palliative Care for Neonates.

Professor Jayne Price is a children's nurse whose clinical background is in children's oncology nursing. She was a clinical nurse specialist in children's palliative care, working with children who had advanced cancer and their families. More recently, her experience has encompassed improving care for children with palliative needs (both cancer and non-malignant conditions) and their families, through education and research. Jayne has been instrumental in developing continuing education opportunities for professionals working within the field of children's palliative care, and also in ensuring palliative care is embedded within the undergraduate nursing programme. She has received a number of awards for both education and research in recognition of her work within children's palliative care.With a specific interest in the psychosocial needs of parents living through the loss of a child, Jayne's doctoral study focused on parents' perspectives of caring for an infant/child with a life-limiting condition. It was during that study that she became interested in perinatal/neonatal palliative care and has carried out some post doctoral research and scholarly work focusing on this aspect of palliative care. Having presented and published widely within the field of children's nursing, nurse education and palliative care, Jayne and her colleague Patricia McNeilly edited a book in 2009, titled 'Palliative care for children and families: An interdisciplinary approach', which has recorded sales worldwide. Her most recent editorial work was wi

Foreword.- Part I. Achieving Quality Nursing Practice in Neonatal Palliative Care.- Chapter 1. Introduction to Neonatal Palliative Care.- Chapter 2. Exploring the Concept on Neonatal Palliative Care.- Chapter 3. Support for Staff: Building Resilience in Nurses.- Chapter 4. The Importance of Effective Communication on the Neonatal Unit.- Chapter 5. Spiritual, Cultural and Religious Care for the Baby and Family.- Chapter 6. Ethical Concepts in Neonatal Palliative Care.- Chapter 7. Legal Issues in Neonatal Palliative Care.- Chapter 8. The Principles of Genetics within Neonatal Palliative Care.- Chapter 9. Antenatal.- Chapter 10. Care of Twins and Multiple Births and Support for the Family: a Detailed Background.- Chapter 11. Care of Twins and Multiple Births and Support for the Family: the Butterfly Project.- Chapter 12. The Decision-Making Process and the Role of the Neonatal Nurse.- Chapter 13. Advance Care Planning.- Chapter 14. Organ and Tissue Donation within Neonatal Palliative and End of Life Care.- Chapter 15. Continuing Emotional and Practical Support for the Whole Family.- Chapter 16. Fundamental Principles of Effective Symptom Management in Neonatal Palliative Care.- Chapter 17. Collaboration between Neonatal Units and Children's Hospices - Exploring Opportunities for Potentially Improving Care and Offering Choices.- Chapter 18. Interdisciplinary Working in Neonatal Palliative Care.- Chapter 19. Developing Knowledge and Competence in Neonatal Palliative Care Practice.- Chapter 20. Care of the Baby after Death and Family, and Focus on Post Mortem Examination.- Part II. Achieving Quality in Neonatal Palliative Care Internationally.- Chapter 21. Introduction.- Chapter 22. Australia.- Chapter 23. Kuwait.- Chapter 24. India.- Chapter 25. Malaysia.- Chapter 26. South Africa.- Chapter 27. Ireland.- Chapter 28. The Netherlands.- Chapter 29. Germany.- Chapter 30. Singapore.- Chapter 31. Ukraine.- Chapter 32. Argentina.- Chapter 33. Italy.- Chapter 34. Scotland.- Chapter 35. France.- Support Organisation.- Index.

"The textbook is the first of its kind to offer guidance to healthcare professionals on caring for babies with life limiting conditions. ... Currently, no other textbook exists offering such guidance specifically for nurses and allied healthcare professionals." (ehospice.com, February 19, 2020)